DID YOU KNOW IT’S A FAMILY AFFAIR?

• Men get breast cancer too! Some men are at risk for having both prostate cancer and breast cancer. These men may need annual mammograms in addition to PSA tests and digital rectal exams on an annual basis.
• Men can inherit BRCA 1 and BRCA 2 genes. If there is a high incidence of breast, prostate, ovarian and/or pancreatic cancer on the same side in the family, men may want to seek counseling about genetic counseling.
• About 5%-10% of all cancers are hereditary. Individuals with these types of genes are likely to develop certain cancers.
• Know your family history.

OCTOBER EVENTS

Prostate Cancer Early Detection and Educational Events

UPCOMING EVENTS

Coming Soon: 5th Annual Prostate Cancer Run/Walk Race and Pre-Party Celebration

SEPTEMBER EVENTS RECAP

HRPHF President and Founder Charlie Hill represented the Forum at the 5th Annual Virginia State University Prostate Cancer Program. More than 225 people attended this impactful event.

Prostate Cancer Warrior Lawrence Davis attended and spoke on behalf of the Forum at a Prostate Cancer Event on September 28th at Six Mount Zion Baptist Church in Hampton, VA. 75 people attended this event and received information about Prostate Cancer.

Mr. Lawrence Davis also represented the Forum at the Nottoway Indian Tribe of Virginia Pow-Wow. This event was attended by more than 500 people, and more than 170 people viewed and received information about Prostate Cancer.

Mr. Lawrence Davis also represented the Forum out of state at a Free PSA Testing event held at Saint James United Methodist Church, Alpharetta, Georgia. 44 men attended this impactful event.

NATIONAL STUDIES

Your Oppportunity to Answer the Call

RESPOND is the largest research study ever to look for answers to the prostate cancer problem for African American men.


RESPOND is working with African American community leaders to make sure the community’s voice is heard.


RESPOND needs 10,000 African American men with prostate cancer to complete a survey. RESPOND needs many of those men to also give saliva or cancer tissue samples. 

RESPOND participants will receive $10 for completing the survey, $20 for providing a saliva sample, and $20 for giving permission to access stored prostate tissue samples.

HOW TO JOIN RESPOND: Complete the survey by mail or online: www.RESPONDStudy.org
 

There is a new study called COMPPARE. It stands for “A Prospective 
COMparative Study of Outcomes with Proton and Photon RAdiation in PRostate CancEr. This study is funded by the Patient-Centered Outcomes Research Institute (PCORI) and led by Dr. Nancy Mendenhall at the University of Florida. COMPPARE is asking 3,000 prostate cancer patients (ages 30-80) across the U.S. who have chosen to be treated with proton therapy or photon therapy to answer brief surveys regarding treatment choice, quality of life, and side effects for at least three years.

Patients who choose radiation therapy want to know which radiation option is best for them in treating their prostate cancer, photon or proton. However, the effects of photons versus protons on quality of life, organ function, and prostate cancer cure rates have not been directly compared in a large, multi-institutional trial. 

COMPPARE needs 300 African American men of the total 3,000 men to complete its survey.


COMPPARE participants will receive up to $250 for completing surveys before radiation begins, during treatment, and at follow-up visits.


HOW TO JOIN COMPPARE: visit http://comppare.org or email them at comppare-admin@ufl.edu.

The Metastatic Prostate Cancer Project (MPCproject.org) is an patient-partnered online research study for men with advanced and/or metastatic prostate cancer. The goal of the project is to generate linked patient-reported, clinical, and genomic data that is de-identified to protect patient privacy and then shared widely with the research community to speed discoveries in prostate cancer.

Both diagnosis and survival rates for metastatic prostate cancer vary a great deal, particularly across racial and ethnic backgrounds, and researchers still do not fully understand why. The MPCproject hopes to enroll and learn from men across the US and Canada, and particularly alongside those who are underrepresented in research to better understand the basis for these differences.

Participation in the MPCproject is easy:

1. Visit MPCproject.org and click “count me in” to complete a short online form with optional questions.

2. Fill out an online consent form that gives permission for the study team to send a simple saliva sample kit, obtain copies of your medical records, and provide an optional blood sample and/or stored tumor tissue (if available)

 Find out more at MPCproject.org

KNOWLEDGE:

•  Early stage prostate cancer that has not spread has no symptoms! 
•  A PSA test may indicate prostate cancer early before it has spread. 
•  The digital rectal exam (DRE) may also indicate prostate cancer before it has spread.

FAITH:

People of faith have felt the need to express their experience with and belief in a much higher power especially in times of trouble such as learning they have cancer. Proclaiming the good news seems to serve most cancer patients well as it helps with their psychosocial and spiritual well being.

EARLY DETECTION:

• Early treatment of prostate cancer may help some men avoid major problems.
•  Early treatment of prostate cancer may help some men live longer.